Essential Long COVID Resources

We’ve curated these science-backed resources to help you better understand and navigate Long COVID. Explore tools and meet other groups collaborating to find answers.

Tools That Build Hope and Resilience.

Research

Long COVID as an Infection-Associated Chronic Condition

National Academies of Science Engineering and Medicine Consensus Study Report on long COVID

RECOVER-Covid

RECOVER-TLC

CURE-ID database for rare diseases

Enroll in Long COVID Research Trial

Lived Experience

Experiencing Long COVID as a Physician and a Patient

Michael Lewis on CURE-ID developer Heather Stone

Assessment Tools

COMPASS 31 scoring autonomic dysfunction

NASA lean test to evaluate orthostatic intolerance

Fatigue Severity Scale

PDF

Clinical Guidance

Bateman Horne Clinical Care Guide

Project ECHO Long COVID and Fatiguing Illness Recovery Program

Listen, Watch or Read

Discover Hope With Long COVID MD

The PODCAST

Clear, practical advice for managing long COVID.

Videos

Experts and patients share their insights

The Newsletter

Never miss an update. Sign up to receive written summaries of each episode, reference sheets, links to research studies, and more.

Which treatment is right for you?

September 29, 2026

How I weigh evidence and assess risk of long COVID treatments.

How to prepare for COVID and flu season—particularly if you have long COVID

September 8, 2026

Know your options for vaccinations, testing, treatment, and support. COVID, Flu, and more.

Chronic Illness Supplies I Actually Use

September 7, 2026

A living list of things that make daily life easier, safer, or require a little less energy.